Clever title… But I am exhausted. That might be the highlight of my writing skills tonight.
Last night I got to bed around 12:30. I hung around in Summers room till I thought I had shown my due diligence as a parent. Then I messed around on the phone in my “Tiny Home”… I rolled around on the camping pad on top of the pullout sofa trying to find a soft spot. Conclusion: There is no soft spot. Sleeping on this bed is like the first night of camping… Always a little easier the following days… because you are so tired you eventually can sleep anywhere after 3 days on a cot or air pad. I expect some of that tonight!
This morning around 4 AM… I started hearing nurses. Then I heard a small child in the room down the hall from us screaming. It’s tough. I eventually got up and showered at 5:30 and then fell back asleep around 7. At 8, I knew Summer was scheduled for her visits and Chemo… So I went next door. Exhausted.
I later told Max that I felt like I got off an international redeye flight… But I am in Memphis. When we land in Europe, we try to stay awake all day so that we are acclimated for a decent night’s sleep the next day. That was my goal today… Stay awake!
Contrary to plans. Summer started Chemo around 6 AM this morning. The nursing staff was in her room rustling around at 3, 4, and 5 as well according to Summer.
She ate decent today. I ran down the cafeteria and got her some hashbrowns, bacon, and a scone. Throughout the day, she was up and going to the bathroom with her roller IV unit. We had very little lunch, but she did have some supper. At Midday, a deacon from the Catholic Ministry came in and gave us both communion.
We watched all 8 episodes of Wednesday (on a Wednesday, get it?) on Netflix throughout the day. (Best thing Tim Burton has done in decades.)
I think the meds are all working and she is doing great with nausea and appetite. Summer was shocked that I was peeling apart and falling to pieces at 8 PM. I am an 11 PM guy… Always have been.
I’m done. I have my final bits of payroll to do tonight and I am crashing!
1 thought on “St Jude – WednesdayX2”
Wonderful to hear that Summer is eating.
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