It was with little fanfare that we slipped into the Med Room this morning and Summer got hooked up with her 90 minutes of Chemotherapy. The nurse asked if she was excited. We both made some cracks about loving our stay here at St. Jude… But we were happy to be ending our tour. The nurse, who must be familiar with Summer said “I see where you get your sense of sarcasm!”. It was all good fun. A few minutes later our nurse was showing us pictures of her cat, paws on the glass of the front door looking for the school bus. Pretty great.
Afterward. Summer had her “group”! I was told to leave and she hung out with her St. Jude friends for a couple hours. Thats fine. I had stuff to work on. I went upstairs to the commons and got my laptop out.
We headed back to Target House where she has been consumed by homework all afternoon. It all works out… I had some ZOOM calls with Toyota and training to do.
Angela called at 4:45 to warn Summer that bingo was happening at 5 and that she shouldn’t miss it. (Mom is the queen of activities!) I looked in her room and she was still swamped with work. She had homework due at 5PM and I don’t believe it’s done yet (writing this at 5:34).
At 6PM the Teen Cancer American ZOOM group will start and she is totally excited to get on that call. She already asked me to plan on moving some stuff around so she can use her mirror.
Mr. Murphy showed his head… You know Mr. Murphy? The guy who wrote Murphys Law?
Summer got a message last night from the surgeon for her facial nerves. They were thinking we could do a preclinic assessment around May 26th… And surgery the following week.
UGH?!?!? That’s the week we were hoping to be on vacation. Summer told them those dates are bad. I hope they come back a week or two later. If you don’t know, there is a line you are not supposed to cross when it comes to these kinds of procedures. 12 to 18 months with no activity in a muscle can effectively make it impossible to revitalize. We have some time… But not a lot. Obviously, the sooner the better.
I’m crossing my toes at this point!
I moved a TV tray and chair into Summer’s room. She had her computer pulled up and is in her “group” online. I can’t wait to see what turns out from this makeup session!!!
I’m running over to Hatty B’s for some chicken!
As Steve Fugate says… Love Life.