Summer has held her temp just fine and her blood tests show that she did not have any blood infections as feared when we brought her back to St. Jude on Sunday. That’s all pretty good news. The rash is still a mystery. Could it be outside influence? Could it be something she ate, drank or took as a med? Every doctor and nurse has pondered these questions over the past few days to see if they can crack the code! No winners yet.
We did get the call that Target House now has an open apartment for Summer and wanted to “onboard” as soon as possible. The reality is that we might be in the ICU here in the hospital for another day or two. We committed to a Thursday afternoon move-in. I think it will be easier this time since we know where everything is. But, I think we have a LOT of stuff to move… And I am not expecting her to carry much! I should be worn out Thursday night.
Per Angela’s comments on this bedding situation in ICU… I brought an inflatable pad with me for the pullout sofa in the caregiver area. Sleeping on this bed reminds me of camping trips. You sleep terribly the first 2 nights…And by the 3rd, you are so exhausted that you sleep like a rock. I am expecting that tonight is another rough sleep.
I just keep saying… Target House…. Target House… To get me through!
For Halloween, the nurses and doctors were a 50/50 mix of normal attire and costumes. The staff was following a theme of “Despicable Me” (The movie with those love’em or hate’m yellow pill people called Minions) We had a couple of characters come in today. One doctor was “Gru” and he played the part very well. Later, we had the little girl who says “Its sooooo FLUFFY!!!” come in and do her act. Very fun. We were laughing.
Other than that… It was solitary confinement for us today. We could have gotten up and walked the loop… But Summer was having none of it today. Maybe tomorrow.
Eating is always the main drama. For breakfast, Summer ate a banana… And un-ate a banana. It did get better after this rough start. I rationed out a half container of dry fruit loops to her afterward and that seemed to stick. In her St. Jude trick-or-treat bag, a few gummy bears stayed down. Chicken noodle soup broth and 10(approx) corn niblets were dinner. Later, a few spoonfuls of vanilla ice cream for dessert. Big day of eating!
We had some great nurses all day who talked about their costumes and favorite shows on the streamers. One nurse told us that a guy goes to local hockey games dressed like Waldo and they look for him all th the time. We think Summer may have to wear this costume outside of this holiday for fun.
We watched a lot of Amazon and Netflix together while I pestered her to eat. “Rings of Power”, “Guillermo del Toro’s Cabinet of Curiosities” and Halloween Edition “Nailed It” to end the night.
One more day of ICU?