St Jude and more home Chaos!

Lots of notes…  The title of this post is appropriate!

The test results call came back good.  MRI, PET Scan, and Spinal Tap all had clean results.  I had some people asking me about this and I realized I did not share.

I secured 2 Nintendos for the week I am gone.  Big thanks to Jim and Paige for helping out.  My biggest goal was to have something to try out while Summer and I are together.  At first Summer was a bit skeptical, but then asked me tonight to make sure I get Mario Cart for us to play.  So, thats a good sign.  Also… Olivia said to get an account on Nintendo so that Summer can chat and play with friends around the county.  I am all for that.

I am dope when it comes to this Chemo thing.  Angela and I are still trying to figure this out… So be patient.  Summer spent her 4 days in the hospital for in-patient chemotherapy and then was released. I asked if she was going back for more in-patient in two days.  Angela said the hospital stays are like once a month.  The rest are normal Chemo visits to the med-room with varying lengths of “sits”.   (I know the St Jude veterans could probably have told me this in advance… but I am bad at asking for tips and tricks!)

If we had prolonged visits to the in-patient services, I was sure the Nintendo would be ideal for the caregiver and Summer to tool around with.  So, its an experiment right now.   I am just knocking around ideas!

While being released…  Summer has been issued a backpack from St. Jude that packs her Saline IV pump.  She needs to keep fluids moving so she can expel the chemo.  She also told me that she is meeting with the nutritionist tomorrow and she is sure it will not be a good meeting.  Over the past week, Summer has lost 10 pounds.  That is not good.  She was barely eating, and everything she did eat made her nauseous.  The dreaded “feeding tube” conversation is going to come back into play if she can’t maintain weight.  All those frightful memories from CARLE come rushing back when we think of shoving hoses down her nose.

Today, she did head to Smoothie King for a treat…  (Photo to the right is here with the spiffy new backpack) When I asked her how it was… She said it was delicious…. But she only took two drinks.  The rest is now in the fridge.

Lastly…  I didnt burn down the house…  But this was still entertaining…

Aiden came home this weekend and has a 4 days break.  While he was in the shower last night, I was getting ready to run laundry. I thought I would be nice and hit “delay” start on the wash.  I then went to bed and assumed the wash went off last night.  Aiden called me around lunchtime today to tell me that the wash did not take.  As a matter of fact, the machine now had a red “lock” symbol on it and will not do anything!  I had him to the standard procedures (per the IT Crowd) and asked him to restart it.  Then unplug it.  Then unplug it till I got home.

In the meantime, Aiden had taken all the dirty socks and underwear and loaded them into the dryer.  He told me on the phone that this was something, and it was better than nothing.

When I got home from work today, I figured out that I sent the timer wrong…  Got the washer reset and had it ready to load.  I looked around, but nothing was where it should be… I then opened the dryer to find a giant lump of underwear and socks gently fluffed …  But oh that smell!  Would he really go back to school with stinky clothes???  Fortunately, we will never know.

Again…  We can get through these trying times… But no promises we will have clean clothes or a house to return to if left to Aiden and I!