I do not have the mental fortitude to make this post as descriptive as it needs to be. Sorry for that in advance.
Summer has been having headaches off and on over the past few months. She has seen every doctor and medical professional along the way making complaints that they keep coming back. We even took her to our clinic in Tremont when she was in town last week to try and nail this down.
Saturday, we came down to Carbondale to start a long holiday weekend in Southern Illinois with her and her boyfriend Nate and she was already complaining of being in pain. She held on to Nate as we walked to dinner and complained of being dizzy. The next morning, Sunday, she said there was no way we could go running around looking at Indian mounds because she was throwing up and had another massive headache.
We headed to SIH emergency room to try and get this sorted out… Again!
From 9AM till 4PM we waited as they did a barrage of tests. There was a skull abnormality on the x-ray… Maybe that was it? Then they did an MRI… And that’s when the problem showed up. A blockage at the Cerebellum that was making it hard to let fluid exit the brain… Thus causing pressure because it cannot escape. The source… A tumor just over 1″ in size that is growing in this area.
The cerebellum controls many automatic functions of the body, and it was determined that the pressure this was applying on her brain could be life-threatening. SIH in Carbondale wanted to send her to Barnes Hospital in St. Louis… We petitioned to be closer to home and Carle was found to have availability. St. Francis in Peoria was a week out. Summer was life-flighted to Champaign and has been at Carle ever since.
Further MRI testing today showed the growth is just in the brain. That’s good. They were checking to make sure nothing was in the spine.
Tomorrow, at 8AM, she will have brain surgery to remove the growth. They will shave parts of her head. They will make a new hole in her head. They will remove the tumor and have it sent to Mayo for analysis. The surgery is 5 to 6 hours long. Dr. Mustaffa was very professional and gave us a rundown of all the risks. There are plenty. Fortunately, she is young and healthy and that will help with healing.
After the surgery is over… She will still be in Intensive Care for a few weeks while they check her vitals and regain the ability to maintain regular pressure in the brain.
Ang and I are trying to figure out the best way to stay beside her and stay close in Champaign. Tonight it’s a questionable hotel since we have to be up at 5AM. After the surgery, maybe we can rent something for longer. I don’t see us back home with her for several weeks.
That is all I know… Going through the motions is a lot easier than sitting and thinking about all the “what-ifs” that could happen. She is with great people and our family has been overwhelmingly showing support (as they always do!) when things get tough.
Thanks for thinking of her.
This morning, Dr Mostaffa said an emergency patient had come in and needed surgery immediately. This means we are out off until Wednesday.
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