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St Jude – WednesdayX2

Posted on January 11, 2023January 11, 2023

Clever title… But I am exhausted.  That might be the highlight of my writing skills tonight.

Last night I got to bed around 12:30.  I hung around in Summers room till I thought I had shown my due diligence as a parent.  Then I messed around on the phone in my “Tiny Home”…  I rolled around on the camping pad on top of the pullout sofa trying to find a soft spot.  Conclusion:  There is no soft spot.  Sleeping on this bed is like the first night of camping…  Always a little easier the following days… because you are so tired you eventually can sleep anywhere after 3 days on a cot or air pad.  I expect some of that tonight!

This morning around 4 AM…  I started hearing nurses.  Then I heard a small child in the room down the hall from us screaming.  It’s tough.  I eventually got up and showered at 5:30 and then fell back asleep around 7.  At 8, I knew Summer was scheduled for her visits and Chemo… So I went next door.  Exhausted.

I later told Max that I felt like I got off an international redeye flight… But I am in Memphis.  When we land in Europe, we try to stay awake all day so that we are acclimated for a decent night’s sleep the next day.  That was my goal today…  Stay awake!

Contrary to plans.  Summer started Chemo around 6 AM this morning.  The nursing staff was in her room rustling around at 3, 4, and 5 as well according to Summer.

She ate decent today.  I ran down the cafeteria and got her some hashbrowns, bacon, and a scone.  Throughout the day, she was up and going to the bathroom with her roller IV unit.  We had very little lunch, but she did have some supper.  At Midday, a deacon from the Catholic Ministry came in and gave us both communion.

We watched all 8 episodes of Wednesday (on a Wednesday, get it?) on Netflix throughout the day.  (Best thing Tim Burton has done in decades.)

I think the meds are all working and she is doing great with nausea and appetite.  Summer was shocked that I was peeling apart and falling to pieces at 8 PM.  I am an 11 PM guy… Always have been.

I’m done.  I have my final bits of payroll to do tonight and I am crashing!

 

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1 thought on “St Jude – WednesdayX2”

  1. Linda L Robinson says:
    January 11, 2023 at 11:48 pm

    Wonderful to hear that Summer is eating.

Comments are closed.

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